“The feeling of being doubted…is an ever-present background noise…”
Did you ever wonder if people believe you? Is that only the mental stomping ground of the addict? The alcoholic?
The feeling of being doubted, of my integrity being questioned, is an ever present background noise…especially when I am sick. I was even afraid, just now, to write the word ‘sick’. (wouldn’t it be better to minimize?)
One very HUGE contributing factor to this constant was the years upon years of describing extreme pain to a plethora of physicians who could find no ‘easy’ or ‘obvious’ condition to label me with. There were no broken bones, I had a history of drug abuse, I had a history of a mental illness diagnosis, and I am a woman. I was also very strong, working difficult physical jobs normally held by men, which may or may not have been a factor.
My experience has not been an isolated one when it comes to women who have Fibromyalgia and/or similar diagnosis. During the years before the medical profession widely recognized this condition I was one of a multitude who went thru years of mental anguish and physical agony before finally being given a smidgen of relief.
Finally a Diagnosis !
It took real determination (and very real disability and pain) to keep pushing on towards a diagnosis. I was told it was all in my head, that I was just overweight and needed exercise and that what I was experiencing was just a consequence of aging. At this point I was crying every night from the burning in my joints, in my muscles and in my spine. My best description for that time was as if I were wearing a dense heavy coat that was soaking wet, all the time. A coat that weighed about 100 pounds and was crushing me.
At this point my work was suffering, a kind boss had taken me aside after noticing my wincing, and suggested a Rheumatologist. Initially even he was sceptical until he got back the results of the CT Scans and MRI’s. (He was the first to order these types of tests!) I distinctly remember the initial shock at him gently taking my hand and apologizing, so sincerely, for not believing the severity of my discomfort. He went on to ask me if I had been in a car accident, the images showed that level of damage to my spine.
There were a myriad of issues the films brought to light, and from that point on my care finally addressed them. The physical relief was matched and even surpassed by the rush of validation! I was taken seriously!! I was, finally, believed!
What do I say to a black mother whose son was murdered at the hands, or knee, of a white man?
. I saw George dying, in front of all the world, murdered. Every fiber of my being cried out for action to save him, knock that cop off of him, hurt those who were hurting him, scream “STOP!!!!!” at the loudest volume my wind and stretching vocal cords could scream. I saw him die. I could see the actual moment the life left him, we all could. His killer’s arrogance galled me, I cried as if George was my own. Those awful, endless minutes are now emblazoned on my conscience, and the world’s. But George’s suffering was finally over, the pain had ended for him. His family’s pain goes on.
. My daddy died unjustly, and it took years for my anger and pain to subside. But, then, I am white. And it wasn’t a police organization, or even a police man who killed him. For me it was a hospital, who killed him just as surely as if they kneeled on his neck. And he was a Sicilian man, very dark complected, 1st generation borne of immigrants to this country, but I suppose he will be considered a “white” man by history.
. But the pain I felt is the same pain George’s loved one’s feel in this sense: there was death, it was not natural, there was injustice, and there is anger. I feel it now, these years later. I was righteously indignant, I loved my daddy more than any girl ever loved her daddy, ever in the whole world. Whole universe I thought. I never saw his flaws, he was a hero to me, and they murdered him, and someone had to pay. I had to make it right , for him. For his memory.
. They hated me at that hospital, I believed. They had been out to get him, because we were poor, and because everyone knows doctors and hospitals only want one thing, right? Money. And we all know that there are very baaaad people in the medical field, there is a long, very, very long history of distrust in the Sicilian immigrant community against the “establishment”. It carried down from tyranny and mafioso, in the “home” country, where my ancestors were murdered and enslaved and oppressed by terrible injustice. Not only was the regime murderous and corrupt, even the local officials were, requiring payoffs and inflicting gross injustice and physical pain on the poor people who were supposed to be under their care. They had no choice, starve, be murdered, or board ships of misery with their last pennies to try living in a beckoning land across the great sea.
. My granparents had experienced the ghettos in New York when they arrived, cramped, dirty, unlit, no facilities, living in dark, dank, freezing, stinking tenant housing in their new country. Now, instead of their tropical isle, where they knew the enemy, there were new enemies to contend with. Such hatred, such predjudice, such injustice, such poverty. All these conditions shaped the mentality of generations, the distrust of the “system”, the lack of eqaulity, the oppression…
. My father was an angry man. For as far back as I have memory, he was mad at what he perceived as injustice in government. In another age pehaps he would have been a radical, I dont know. But he worked so hard, all his life, had access to more education than his parents ever had, served in the military and was able to move to Florida in his early 50’s. which had been his lifelong dream. He never stopped working, even then, and I had everything I needed as his kid, except love. But I adored and idolized him, to my mother’s dismay. When I became his sole caregiver, he was my child, and I determined to never let anything bad happen to him. For all the grief I had put him through in my life as an addict, now that I was sober I would appease his every whim, and ease his Dementia and Alzheimer’s. He was my reason for being, for except for my dear shih-tzu’s I had lost everyone in my family, and had no children.
. I was a she-bear when it came to his care. Endless research, talking to pro’s and others on caring for the elderly. But no matter what I promised him, no matter how good I cared for him, and no matter how totally committed I was in my devotion, I was not able to save him from being killed.
. So, then. What can I say to the millions of traumatized, oppressed, angry people who are fighting right now? They will do what they believe they must, to find relief for their anger. But to the loved ones of a man who died unjustly, there is something I can say, even in my proverbial “whiteness”: I am so, so sad for you. I can relate. I can relate to the sickening feeling in your gut, that horrendous hot ball of lead where your heart used to be. I remember the anger, the absolute bursting feeling of helplessness, the burning knowledge that this should never have happened to your child, your son, your daddy, your husband, your brother, your uncle, your nephew, your cousin, your dear, dear friend. Your Beloved.
. My pain was real… Your’s is all too real right now. I will never question your pain, or think I know what you should feel, or do. I never want to exaccerbate your suffering. everyone grieves in a different way, for different lengths of time, for different reasons. there is never a right or wrong way to grieve. I wish you peace, someday…healing…a lessening of this great burden you carry.
. My anger was only relieved by my learning the true reason for death, suffering and in justice. Knowing and believing in the the knowledge that God will soon do away with the true source of the evils we experience as humans. the tormenter of us down thru the ages, all the way back to the garden of Eden. The father of the lie, Satan.
God had an answer to Satan’s lie right there on the spot: Jesus Christ, God’s Only-Begotten Son and The King of God’s Kingdom would crush Satan and throw him and all his cohorts into the Abyss!! It will happen very soon, when God says it is time! Then the words of Revelation will come true!
Revelation 21:3-5 reads:
. ” With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them , and they will be his people. And God himself will be with them.(4)And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”
(5) And the One seated on the throne said:”Look! I am making all things new.” Also he says:”Write, for these words are faithful and true.”
. Such beautiful words…a beautiful dream, perhaps? No. A promised reality from our God who cannot lie, whose purposes always succeed, and whose prophecies always come true. I have a favorite scripture about the surety of all God’s promises coming true, maybe because I am a farmer at heart, who has always loved the rain.
. This is in the Bible book of Isaiah, in Chapter 55, beginning in verse 8: “For my thoughts are not your thoughts, and your ways are not my ways,” declares Jehovah. (9) “For as the heavens are higher than the earth, So my ways are higher than your ways, and my thoughts than your thoughts. (10) For just as the rain and snow pour down from heaven And do not return there until they saturate the earth, making it produce and sprout, Giving seed to the sower and bread to the eater,(11) So my word that goes out of my mouth will prove to be. It will not return to me without results, But it will certainly accomplish whatever is my delight, and it will have sure success in what I send it to do.”
. Yes, The Creator of the entire Universe has everything taken care of, he has told us that he will be the only Judge, and His Son will carry out his Judgement. The Ride of the Four Horsemen is already well underway. One day soon our dead loved ones will be resurrected and what joy there will be, when this earth is finally free of evil and we will live forever in peace.
. Please take the time to learn what the Bible says, I want you to have the peace of mind and heart that I finally found. It is not too late, my friend.
Is anyone out there as old as I am? I grew up to the Mary Tyler Moore show, on every week as I recall. When I was 10 or so, she was beautiful to me, not just as a pretty woman (which she was and is, if she is still alive, is she?…)but as a woman in “the workplace”. I was too young to understand the dynamics of discrimination against women, I was buying into the whole “be a good girl, speak when you are spoken to” misogynist mantra.
Flamingo Billiards Tour at Amy’s Billiards (pictured) The Year Before Fall
Day Old Cleopatra
Mommy and Izzy, in Alabama
my sweet, one eyed pup
That is where the slogan “We’re going to make it after all” first made me feel warm and fuzzy. My folks both worked long, hard hours to feed my brother and I. We saw them briefly each morning. Mom on her way to bed after all night at a local “old folks” hospital, and Dad on his way to the Speciality Steel Mill. The only thing “special” about the steel mill that I could see was the fact that Dad was “‘specially”angry when he got home.
Baby Cleo, who had to learn to live with one eye!
aren’t i the cutest thing you’ve ever seen?
baby cleo, in her new dress!
KODAK Digital Still Camera
Dad and his Fan Club!
inside the circle of my heart
In God’s Memory
. We didn’t want for anything that I ever knew, except that I never got designer jeans like my best friend, with the rich dad. No, my belly was full, and I was as happy as a chubby pre-teen with thick glasses and a mouth full of braces could be in the late 70’s. The only thing lacking was joy, any kind of joy, at home. Even “The Holidays”, when I still celebrated them, were joyless, because there was always disappointment lurking under the tree. Family gatherings were nice before I got old enough to feel the undercurrents of dislike and tension that flowed thru the affairs, like the lambrusco in the fancy glasses.
. We are going to make it. After all.
sunset in paradise
African Lily, one of my favorites!
“i’m not sure how my feet work yet…”
He Love Us!
. I’m in the ” after all” phase of life now. And I have made it, thus far . All the family drama is distant history, now that my parents are dead they don’t fight as much.(chuckle). I have learned to live without them here, and I have gleefully learned to live without my abusive ex and now deceased husband. (No, I’m not gleeful at his being deceased.)
. I have lived on my own for 4 years now, Dad died on 3/7/16, and Mom on 3/21/10. The grief did not stab me like a bayonet to the stomach this year, no, it was a dull, ongoing ache that I thought I didn’t feel, until this very moment. A heaviness inside my heart, a gray, damp blanket on my view. But I have made it, after all…
My Izzy, 2005-2017
This is me now, the pain has mellowed, I see love ahead!
“The Sentinel’s Prayer”, acrylic on canvas, Susan T. Martin2017
. I want to share happy tidings, tho’, not the fear mongering that is flying all around the internet and all the airwaves. Yes, this Pandemic is a very, very bad thing. Many of our loved ones, friends and neighbors will get very sick, and many will die. More people will die than usually do in a “regular” time period. It will be very difficult to work, to shop, to meet with friends and family. However, we must endure these difficulties with a hopeful demeanor, and share our hope with Everyone we can!!! We All need to support our fellow humans, and we CAN!!!!!
You may ask why, and I understand how hard it is not to have a pity party when one has no access to TP or Oreos. I am not immune to this situation, especially the Oreo thing. But as a person who has lived with chronic intractable pain all over my body for the last 20years, I do have experience with the power of positivity shared. This will be a HUGE HELP TO ALL OF US: BE UPBEAT AND POSITIVE WHEN SPEAKING TO OTHERS! DO NOT BOG OTHERS DOWN BY SHARING NEGATIVITY SUCH AS WHAT WE CAN’T DO, BUT FOCUS ON STEPS WE CAN TAKE.
One thing we must do to help is STAY POSITIVE when we talk to others. Just as you would not talk to a Child about negative outcomes of a storm, we all, ALL need comfort from our fellow humans right now. Just as we would not want our Mom to be overly anxious about a situation, think of your friends and neighbors who are anxious also!
. We want to help the people we love, and hopefully we want to help our fellow man who we don’t even know. I am going to work on this, and I already know it helps, because people who cared for me when I was incapacitated did it for me. And I made it thru to better days.
. I hope you are doing well, that you can see the sky today, wherever you are. One thing that helps me so much is prayer because I know God is close to me when I pray to him in his Son, Jesus name. Reading the Bible books of Psalms and brings me peace, and talking on the phone to others about God’s promises soon to be fulfilled. If I can just smile at someone, it lifts my mood and hopefully theirs as well. I send out my warm hugs and smiles to all of you.
It has been AGES since I have been here, it seems that when I am on fire with my visual art , my written art suffers. Time is a factor, when I have 5 projects going at once, the voices in my head are rather subdued, because all the poetry is oozing out of my fingertips onto canvas, paper, metal, wood and wall. As has been the way this past year, with some success…
I had hoped top be able to exist on my earnings from my visual art, and while I am not there yet, I am making a dent. I have had one of my paintings put in a permanent collection, I have been highlighted with my artwork in a video for the nearby Mental Health Facility! Woohoo! I find that very satisfying and amusing all at the same time! I should have demanded money, but they didn’t offer, so I used it as a photo op. I gifted them the painting you see here, although I still have it here at the house , because I wasn’t satisfied with it… (never am, you know). I will have to take it in soon, to keep my word… and I need to see my wonderful therapist because memories are pushing their nasty little heads into my reality…
It’s the “holidays”… The time of memories… poo poo, bluck, bluck…. memories have too much power over me, so I guess I just stuff them. Me, the one always saying that “you have to let it out!” I let it out too much, which gave too many people too much power over me, too many ways to rattle my chain. I have been solitary, and sequestered here, and while it may be a little too much solitude I am glad to have my space. True, my sleeping habits could use improvement, but then I am a work in progress…
Just for today I don’t have to mourn. I can just be ok.
The first thing I have to do is turn to my Higher Power and give Him all this pain, He is much bigger than me, He can carry it and throw it away. He has His Active Force, His Holy Spirit to help me have “the power beyond what is normal”(2 Corinthians 4:7) if I only ask for it, so I am asking and pleading now. The wonderful thing is that even though my disease tells me there is no hope to feel better, I know deep inside that this is a lie. So I must FORCE myself, in the midst of the inertia of my illness, to DO SOMETHING to help myself. Even when that is the LAST thing I want to do.
So I pray, and I MOVE OUT OF THE DARKNESS, taking my head out from beneath bedcovers I have pulled tightly over my head. Prayer is a gift from God, a lifeline to raise me out of this pain. There is a particular scripture that has helped me so much over the years that perfectly describes what my relationship with God does in this regard. It is at Psalm 40, and it was originally penned by David as he was inspired with God’s Holy Spirit, His Active Force. Here I have taken excerpts: ” I earnestly hoped in Jehovah, and so he inclined his ear to me and heard my cry for help. He also proceeded to bring me up out of a roaring pit (my depression), out of the mire of the sediment (where I was stuck, immobilized by mental illness, as in quicksand). Then he raised up my feet upon a crag. He firmly established my steps…(Psalm 40:1,2 comments in parenthesis are mine).
What a marvelous healing provision from the Highest Personage in the Universe, to hear the tiny prayer from a tired, depressed human whose mind tells her she is not worth saving. He sees my heart, sees my pain, and reached out to stand me on my feet again. It is not a miracle cure, He gives me the mind to pick up the tools I need to fight this mental illness, provisions such as mental health professionals, meetings for worship that put me with others who have suffered the same way and recover, and His Word the Bible, as my guidebook.
Another example of God’s power to help me back to joy is found in the Bible book of Philippians, where we read, ” Do not be anxious over anything, but in everything by prayer and supplication along with thanksgiving let your petitions be made known to God, and the peace of God that excels all thought will guard your hearts and your mental powers by means of Christ Jesus.” (Philippians 4:6.7). Beautiful isn’t it? How comforting to know that help is only a prayer and grain of faith away. I do not have to sit in a pile of despair and hopelessness forever.
To have this loving relationship with Jehovah, there are some things He asks from us in return, none of which are too difficult for even a person like me. He asks that we love Him with whole-souled devotion, that we turn away from sin and repent of our past wrongs, and that we learn accurate teaching from His Word , the Bible. And another requirement is to pt Faith in the Ransom Sacrifice of His pefect only-begotten Son, Christ Jesus. I was able to do this by putting my pride aside, letting light into my hate-darkened heart, opening my mind by asking humbly for God’s help and by accepting the offer from Jehovah’s Witnesses for a free home Bible study. Eventually I was able to qualify for baptism by water immersion, dedicating myself to my Wonderful God, putting faith in all His Loving Provisions, and in the Most wonderful Provision of all, the sacrifice of Jesus Christ, the greatest gift , the greatest act of Love ever expressed.
By writing this post and finding all these examples of God’s Love for me as an individual, I am lightened of this burden, this illness of Depression. No, it is not gone, and I will have to cope until the new system when everyone will be freed from the pain of mental illness, and every other sickness too.
.Praise God, and may you find peace also under the shelter of His mightly wings. Any one of Jehovah’s Witnesses can help you to learn more, and you can find help online at the official website, jw.org.
I answered his call tonight. What a foolish foolish girl. I knew that it was wrong, to talk to the abuser, but I did it anyway. After years of being strong, of cutting out the gangrenous heart of me. How could I sell my broken soul out so cheaply? I knew he would say something that would bring it all back, and when I heard the liquor in his voice I remembered the loathing I felt for myself when I realized I had given away all that ever was good inside me, given it to a psychopath who only loved me for the pain I would suffer at his hands.
Now that I let that voice into my ears, that devil’s voice as sticky as Karo, how do I unhear it? When it professes “love” to me from a dead man’s mouth? How do I wash the blood off of my mind’s eye, when I dream of his devil fists, his green devil eyes, his devilish ways with his devilish hands on my broken and battered memory of myself?
Why did you do it?
Did you really need another reason to be afraid today?
Did you need another reason to doubt your own sanity?
Did you really need to add all those forgotten nightmares to the list of must-see flashbacks you have on file?
Now the phone won’t stop ringing, so I turned them all off. But can I turn of that record that has played in my mind ever since I broke free?
That record that keeps going round and round playing a tune called,
” If I can’t have you, then nobody will…”
How long until he’s at my door?
Did I just invite him when I answered that call tonight?