“The feeling of being doubted…is an ever-present background noise…”
Did you ever wonder if people believe you? Is that only the mental stomping ground of the addict? The alcoholic?
The feeling of being doubted, of my integrity being questioned, is an ever present background noise…especially when I am sick. I was even afraid, just now, to write the word ‘sick’. (wouldn’t it be better to minimize?)
One very HUGE contributing factor to this constant was the years upon years of describing extreme pain to a plethora of physicians who could find no ‘easy’ or ‘obvious’ condition to label me with. There were no broken bones, I had a history of drug abuse, I had a history of a mental illness diagnosis, and I am a woman. I was also very strong, working difficult physical jobs normally held by men, which may or may not have been a factor.
My experience has not been an isolated one when it comes to women who have Fibromyalgia and/or similar diagnosis. During the years before the medical profession widely recognized this condition I was one of a multitude who went thru years of mental anguish and physical agony before finally being given a smidgen of relief.
Finally a Diagnosis !
It took real determination (and very real disability and pain) to keep pushing on towards a diagnosis. I was told it was all in my head, that I was just overweight and needed exercise and that what I was experiencing was just a consequence of aging. At this point I was crying every night from the burning in my joints, in my muscles and in my spine. My best description for that time was as if I were wearing a dense heavy coat that was soaking wet, all the time. A coat that weighed about 100 pounds and was crushing me.
At this point my work was suffering, a kind boss had taken me aside after noticing my wincing, and suggested a Rheumatologist. Initially even he was sceptical until he got back the results of the CT Scans and MRI’s. (He was the first to order these types of tests!) I distinctly remember the initial shock at him gently taking my hand and apologizing, so sincerely, for not believing the severity of my discomfort. He went on to ask me if I had been in a car accident, the images showed that level of damage to my spine.
There were a myriad of issues the films brought to light, and from that point on my care finally addressed them. The physical relief was matched and even surpassed by the rush of validation! I was taken seriously!! I was, finally, believed!
. Fall in a heap, exhausted. Then get up, clean up, and do it all over again.
. There is joy in this. This “living” we do. No matter how sweaty, or dirty, or ugly, this “living” is a beautiful thing.
. There is no ‘give up’ here, no ‘quit’ , no ‘over it, no ‘packing it in’.
This is where every. breath. matters.
. DO YOU HEAR ME?
EVERY BREATH MATTERS.
Right now, in my little trailer in the middle of down, down, way down and out USA, I am deciding to care. I am deciding that my sufferings will amount to something, that all this silence and fear and worry in my heart will be done away with, that with this breath of life my Creator blessed me with will be used to help someone else live, too.
. I know I’m a rag-tag mess. I can’t think straight most of the time, and there are days I can’t leave my house. I am oppressed by an illness that tells me I don’t have it, and that feeling like I’m sick is a sin. I’m not exhausted, it tells me, I’m lazy. I’m not in excruciating pain, I’m a dope seeker. I was not abused, assaulted and raped, I was promiscuous.
. I am here, I am now, and with my God’s help, I will reach out to someone else. And with my God’s help, I will not believe the lies. Instead I believe the Bible, God’s own letter to me, and to all his children. I want to live.
Everyone want’s to be pretty, or beautiful, I think. I know I was obsessed with the thought my whole life, and deprived myself of much happiness for what I thought was a severe lack of it. I had no sense of my own “looks” till about 8 or so, my parents told me I was pretty before that, and my Sicilian Grandma would pinch my cheek and say , “Bella, bella!!”
Baby me in my favorite coat
the artist, poet, writer, and survivor: S. T. Martin
Then, one summer day, my Mom decided to enter me in a local child’s beauty contest…She started by fussing with my hair. I was busy digging up bugs or something in the yard, so her newfound interest in me was a bit unsettling. I was an obedient child, so I let her fuss and fiddle. I remember it being spring, and the yard was full of bird’s chirping and golden light. Mom was in a good mood initially, then she asked me to sit a certain way on the back porch, and she whipped out a camera. Well, that seemed fine, and I asked her what the occasion was. Oooh, a little contest, and you are going to win! This made me more agreeable, initially.
. The session took quite a while, and Mom wasn’t satisfied with the efforts, so we kept pressing on. I think I must have gotten too fussy, because I don’t have any warm fuzzy feelings attached to this memory. I just know we got thru it somehow, and I went back to my scientific bug experiments.
Weeks passed, then excitedly the local gazzette prints the photos for review. All the other girls had their hair in pigtails with ribbons, lacy ruffled collars, some even had little dot earrings, or a pretty necklace. We raced thru the names to my photo…oh…my photo. Here was a ‘new’ look! With half of my little face in shadow, you could see right away that Mom hadn’t had the right lighting. Or maybe it was the bipolar side showing up even then!!! More than that, though, I was wearing just my favorite tee shirt, and my short “pageboy” haircut was in stark contrast to the other, pretty, girls. No necklace, no cute little dot earrings. And no prize.…Sigh… Mom was more upset than I was initially, I had never compared myself to other girls before that, as I recall. I do remember Dad criticizing her photo-taking ability, as he conitinued to do for the rest of her life, and thereafter for a good portion of mine(till his death!). There were rumblings inside the jealous side of my psyche, the newspaper had it all there in black and white : Susie is different. You would think that would be a good thing for a little tomboy like me, but I did not like the way it felt.
. And I really hated having my photo taken, for a long time since. But now that I am past childhood, even the one that lasted till I was 40 or so, and now that I have a wonderful electronic device to photograph myself, I like to. From time to time I get really down on myself, and I am afraid I may turn into my Mom, who would gaze at herself in the mirror and say, “I’m so ugly.” When I found her doing that it made me cry , for her, and get angry, for me, because I am her identical twin!!! We are all beautiful.
. Make sure you hear me: we are all beautiful. All of us, all the time.
Sleepy Sue…
Feeling Sad and Tired
my editor
Cookie Monster!
Resting Sue
Blue Beach Day
There is no “wait until” time to be beautiful…until I lose weight, until I get a tan, until I grow up, until I get some body changing, unnatural surgical procedure. And you don’t lose your beauty when you age, either, so don’t fall in that rut. Or try not to.
My New Braveheart Girl Hairdo (remember Mel Gibson’s Mullet?)
. Be gentle in your assessment of your appearance, don’t judge yourself by peering at your reflection from 2 inches away. Everybody has enlarged pores from that distance! And scars? Honey, I have scars if you wan’t to compare them sometime. From acne, to road rash due to jumping out of a moving car, to adult chicken pox that were even in my mouth and on my bottom as a 40 year old….to all my surgery scars and beatings I received, chipped teeth and all, even the scar where my husband stabbed me, or the ones on my neck when he strangled me unconscious. Yes, I have scars.But it is really true: What is on the outside is of no importance. Some may say, that’s easy to say if you are beautiful, but what if you are disfigured? I watch alot of documentaries, and one of the recent ones was about the Young woman some years ago who had her face torn off by her friend’s pet chimpanzee. This woman was nearly dead when help arrivived, and her story is a traumatic one.
. But her daughter just says it all when she says that she used to not believe those sayings that “what is on the inside is what makes someone beautiful”, until she was with her Mom again after the accident. Her Mom is so beautiful, without a face, or hands, her inner strength and love prove the old saying true. If you are strong and can watch stories like that she really is an amazing and wonderful example to all.
. So, finally, when I was bumming out on my looks the other day, I kicked myself off the couch, put on some colorful makeup and clothes and had a silly photo shoot. It really was nice, in this isolation, to just have a play day. And the fun wasn’t over after the pictures were taken, then I had more fun editing them until I really thought , ” I am pretty!”
P.S. I did mention the make-up and photo-editing, didn’t I?
What do I say to a black mother whose son was murdered at the hands, or knee, of a white man?
. I saw George dying, in front of all the world, murdered. Every fiber of my being cried out for action to save him, knock that cop off of him, hurt those who were hurting him, scream “STOP!!!!!” at the loudest volume my wind and stretching vocal cords could scream. I saw him die. I could see the actual moment the life left him, we all could. His killer’s arrogance galled me, I cried as if George was my own. Those awful, endless minutes are now emblazoned on my conscience, and the world’s. But George’s suffering was finally over, the pain had ended for him. His family’s pain goes on.
. My daddy died unjustly, and it took years for my anger and pain to subside. But, then, I am white. And it wasn’t a police organization, or even a police man who killed him. For me it was a hospital, who killed him just as surely as if they kneeled on his neck. And he was a Sicilian man, very dark complected, 1st generation borne of immigrants to this country, but I suppose he will be considered a “white” man by history.
. But the pain I felt is the same pain George’s loved one’s feel in this sense: there was death, it was not natural, there was injustice, and there is anger. I feel it now, these years later. I was righteously indignant, I loved my daddy more than any girl ever loved her daddy, ever in the whole world. Whole universe I thought. I never saw his flaws, he was a hero to me, and they murdered him, and someone had to pay. I had to make it right , for him. For his memory.
Another Day in Paradise
. They hated me at that hospital, I believed. They had been out to get him, because we were poor, and because everyone knows doctors and hospitals only want one thing, right? Money. And we all know that there are very baaaad people in the medical field, there is a long, very, very long history of distrust in the Sicilian immigrant community against the “establishment”. It carried down from tyranny and mafioso, in the “home” country, where my ancestors were murdered and enslaved and oppressed by terrible injustice. Not only was the regime murderous and corrupt, even the local officials were, requiring payoffs and inflicting gross injustice and physical pain on the poor people who were supposed to be under their care. They had no choice, starve, be murdered, or board ships of misery with their last pennies to try living in a beckoning land across the great sea.
. My granparents had experienced the ghettos in New York when they arrived, cramped, dirty, unlit, no facilities, living in dark, dank, freezing, stinking tenant housing in their new country. Now, instead of their tropical isle, where they knew the enemy, there were new enemies to contend with. Such hatred, such predjudice, such injustice, such poverty. All these conditions shaped the mentality of generations, the distrust of the “system”, the lack of eqaulity, the oppression…
. My father was an angry man. For as far back as I have memory, he was mad at what he perceived as injustice in government. In another age pehaps he would have been a radical, I dont know. But he worked so hard, all his life, had access to more education than his parents ever had, served in the military and was able to move to Florida in his early 50’s. which had been his lifelong dream. He never stopped working, even then, and I had everything I needed as his kid, except love. But I adored and idolized him, to my mother’s dismay. When I became his sole caregiver, he was my child, and I determined to never let anything bad happen to him. For all the grief I had put him through in my life as an addict, now that I was sober I would appease his every whim, and ease his Dementia and Alzheimer’s. He was my reason for being, for except for my dear shih-tzu’s I had lost everyone in my family, and had no children.
Always a Dapper Dad
. I was a she-bear when it came to his care. Endless research, talking to pro’s and others on caring for the elderly. But no matter what I promised him, no matter how good I cared for him, and no matter how totally committed I was in my devotion, I was not able to save him from being killed.
. So, then. What can I say to the millions of traumatized, oppressed, angry people who are fighting right now? They will do what they believe they must, to find relief for their anger. But to the loved ones of a man who died unjustly, there is something I can say, even in my proverbial “whiteness”: I am so, so sad for you. I can relate. I can relate to the sickening feeling in your gut, that horrendous hot ball of lead where your heart used to be. I remember the anger, the absolute bursting feeling of helplessness, the burning knowledge that this should never have happened to your child, your son, your daddy, your husband, your brother, your uncle, your nephew, your cousin, your dear, dear friend. Your Beloved.
. My pain was real… Your’s is all too real right now. I will never question your pain, or think I know what you should feel, or do. I never want to exaccerbate your suffering. everyone grieves in a different way, for different lengths of time, for different reasons. there is never a right or wrong way to grieve. I wish you peace, someday…healing…a lessening of this great burden you carry.
. My anger was only relieved by my learning the true reason for death, suffering and in justice. Knowing and believing in the the knowledge that God will soon do away with the true source of the evils we experience as humans. the tormenter of us down thru the ages, all the way back to the garden of Eden. The father of the lie, Satan.
God had an answer to Satan’s lie right there on the spot: Jesus Christ, God’s Only-Begotten Son and The King of God’s Kingdom would crush Satan and throw him and all his cohorts into the Abyss!! It will happen very soon, when God says it is time! Then the words of Revelation will come true!
Revelation 21:3-5 reads:
. ” With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them , and they will be his people. And God himself will be with them.(4)And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”
(5) And the One seated on the throne said:”Look! I am making all things new.” Also he says:”Write, for these words are faithful and true.”
. Such beautiful words…a beautiful dream, perhaps? No. A promised reality from our God who cannot lie, whose purposes always succeed, and whose prophecies always come true. I have a favorite scripture about the surety of all God’s promises coming true, maybe because I am a farmer at heart, who has always loved the rain.
. This is in the Bible book of Isaiah, in Chapter 55, beginning in verse 8: “For my thoughts are not your thoughts, and your ways are not my ways,” declares Jehovah. (9) “For as the heavens are higher than the earth, So my ways are higher than your ways, and my thoughts than your thoughts. (10) For just as the rain and snow pour down from heaven And do not return there until they saturate the earth, making it produce and sprout, Giving seed to the sower and bread to the eater,(11) So my word that goes out of my mouth will prove to be. It will not return to me without results, But it will certainly accomplish whatever is my delight, and it will have sure success in what I send it to do.”
his roses
. Yes, The Creator of the entire Universe has everything taken care of, he has told us that he will be the only Judge, and His Son will carry out his Judgement. The Ride of the Four Horsemen is already well underway. One day soon our dead loved ones will be resurrected and what joy there will be, when this earth is finally free of evil and we will live forever in peace.
. Please take the time to learn what the Bible says, I want you to have the peace of mind and heart that I finally found. It is not too late, my friend.
. There is often some bright speck, a teeny-weeny glint, in the midst of devastation. Often this tiny glimmer of good goes unseen for years, decades, even centuries. I’m sure there have been major disasters where no bright side was ever found, the loss being only that. A loss. Losses. Deaths. Dying.
. We could only see that, if we got tunnel vision with this Covid Pandemic. Only the disease, the fear, the grief, the bodies stacked up like cord wood. It could just open it’s huge great-white-shark-sized mouth with it’s blood-covered-razor-sharp giant teeth and swallow us whole. Then our lives will have ended, with a dark shroud of sadness enveloping our memory. Is this how you are feeling? Are you frightened?
. It certainly is a normal reaction to this situation. But there IS a silver lining… Have you heard about the animals? They are coming out of the woods, out of the forests, out of the bushes, out of the darkest recesses and back into the sunlight! With humans staying quiet, staying out of their cars, letting the Earth rest from it’s gasping, the animals are out!!! It thrills me, it brings joy to my weary heart to see images of river otters playing in a grassy median, rolling and romping, and laughing!(I’m sure they are laughing, they have to be!)
My Izzy, 2005-2017
. I see cardinals again , and osprey flying low. I hear owls, and see ‘coons and possum. Oh, I know, I’m talking about “less desirable”wildlife, but let me tell you, it fills my heart near to bursting. As a child I would read “Born Free”and Miss Anderson’s Cheetah stories, gobbling up the word images of animals running free across African Savannahs. I dreamed nightly about my wild Stallion that I would ride someday, and about Bambi becoming a Stag.
. My Mom’s Bible Study books had images of happy people hugging lions and petting tigers, and I physically yearned for those images to come true. As I learned about God and thought about His love in creating puppies and kittens, I found Bible passages that promised a paradise one day. And as the years have past my faith has become brighter, and the day for me to hug a white tiger, or play with a wolf pup has gotten closer ,too.
. Yes, there is much sadness, sickness and death. There is injustice and corruption and pollution. And , sadly, there are worse things to come in the future, no matter where you live on this planet. But it all is bringing us closer each day to God’s fulfilled promises, such as the end of wickedness, pain, crime and hatred. To days of joyful work for humans, building houses, planting gardens. Many people think that God is causing this horrible pandemic, and that He is a God who throws people into Firey Hell.
. I have studied the Bible with Jehovah’s Witnesses for many years, and was baptized in 2003…but I had many things that I changed, only with God’s help. I was a full blown drug addict and alcoholic for 23 years, beginning at age 13. I only knew abusive and violent relationships, having my nose broken twice, being tied to a tree, stabbed and shot at, being choked unconscious more than once, and more. All this by my own husband. By the time I was 33, I looked like a 50 year old, and I felt 100. I had so many health problems, pain was my constant companion and still is. I smoked Crack, Pot, snorted coke, meth and used drugs intravenously for years. I drank my first beer most days by 9am, and lit my first cigarette before my eyes were open in the morning. I now have PTSD, and COPD. I had Hep C . I was dying and wished I was dead. Finally, before my husband killed me, he was arrested by the ATF and was convicted as a habitual offender, 15 years to life.
. Oh, how I cried. I thought my world had ended. I really went wild. He wanted me to work with the law to get his sentence reduced, I thought ATF agents were behind every tree. I refused to work with the Feds, because I thought I was smarter than them. I hooked up with a member of a MC club, and planned to tell the FBI about it… After all the humiliation and abuse they told me they would never use any info I gave them…I wanted to die… But I didn’t.
. I called my Mom, and begged to come home. She let me. I was the proverbial daughter. Near death and bankrupt in every way I moved back to my parent’s house.
Lots of things happened that I could go on about. Bad things. And worse things.
. But there was a glimmer, a glint of good in all that mire I was in…
. I got on my knees before I took the last step to suicide, and I begged, pleaded, beseeched, cried and screamed my anguish and remorse out to God.
. He heard. And He helped.
. I was able to get clean and sober, 21 years ago this September. I quit smoking the next year. And then, after calling God my “Higher Power”in AA for another year I learned that God , Jehovah God, could and would and did forgive me.
. Yesssssss….deep inhale…..Yessssss!!!
KODAK Digital Still Camera
seems like an eternity ago, when my hair was long, and I still felt pretty. This is before all the accidents, surgeries and injuries and before Mom died.
. You can feel this forgiveness too. I hope you do. Then I can meet you, in paradise on earth when all this badness is finished, for good.
(if you want to learn like I did, JW.org is where to go… You’ll be able to read and study the Bible, watch videos and learn precious truths…and you will learn how God sent His Son, Jesus to sacrifice his life for ALL humans…yep, me…and YOU TOO !!!)
Is anyone out there as old as I am? I grew up to the Mary Tyler Moore show, on every week as I recall. When I was 10 or so, she was beautiful to me, not just as a pretty woman (which she was and is, if she is still alive, is she?…)but as a woman in “the workplace”. I was too young to understand the dynamics of discrimination against women, I was buying into the whole “be a good girl, speak when you are spoken to” misogynist mantra.
Flamingo Billiards Tour at Amy’s Billiards (pictured) The Year Before Fall
Day Old Cleopatra
Mommy and Izzy, in Alabama
my sweet, one eyed pup
That is where the slogan “We’re going to make it after all” first made me feel warm and fuzzy. My folks both worked long, hard hours to feed my brother and I. We saw them briefly each morning. Mom on her way to bed after all night at a local “old folks” hospital, and Dad on his way to the Speciality Steel Mill. The only thing “special” about the steel mill that I could see was the fact that Dad was “‘specially”angry when he got home.
patient izzy
In God’s Memory
Dad and his Fan Club!
baby cleo, in her new dress!
aren’t i the cutest thing you’ve ever seen?
the sisters!
inside the circle of my heart
KODAK Digital Still Camera
Baby Cleo, who had to learn to live with one eye!
. We didn’t want for anything that I ever knew, except that I never got designer jeans like my best friend, with the rich dad. No, my belly was full, and I was as happy as a chubby pre-teen with thick glasses and a mouth full of braces could be in the late 70’s. The only thing lacking was joy, any kind of joy, at home. Even “The Holidays”, when I still celebrated them, were joyless, because there was always disappointment lurking under the tree. Family gatherings were nice before I got old enough to feel the undercurrents of dislike and tension that flowed thru the affairs, like the lambrusco in the fancy glasses.
. We are going to make it. After all.
African Lily, one of my favorites!
hope
sunset in paradise
He Love Us!
dusk
“i’m not sure how my feet work yet…”
. I’m in the ” after all” phase of life now. And I have made it, thus far . All the family drama is distant history, now that my parents are dead they don’t fight as much.(chuckle). I have learned to live without them here, and I have gleefully learned to live without my abusive ex and now deceased husband. (No, I’m not gleeful at his being deceased.)
. I have lived on my own for 4 years now, Dad died on 3/7/16, and Mom on 3/21/10. The grief did not stab me like a bayonet to the stomach this year, no, it was a dull, ongoing ache that I thought I didn’t feel, until this very moment. A heaviness inside my heart, a gray, damp blanket on my view. But I have made it, after all…
My Izzy, 2005-2017
This is me now, the pain has mellowed, I see love ahead!
“The Sentinel’s Prayer”, acrylic on canvas, Susan T. Martin2017
. I want to share happy tidings, tho’, not the fear mongering that is flying all around the internet and all the airwaves. Yes, this Pandemic is a very, very bad thing. Many of our loved ones, friends and neighbors will get very sick, and many will die. More people will die than usually do in a “regular” time period. It will be very difficult to work, to shop, to meet with friends and family. However, we must endure these difficulties with a hopeful demeanor, and share our hope with Everyone we can!!! We All need to support our fellow humans, and we CAN!!!!!
You may ask why, and I understand how hard it is not to have a pity party when one has no access to TP or Oreos. I am not immune to this situation, especially the Oreo thing. But as a person who has lived with chronic intractable pain all over my body for the last 20years, I do have experience with the power of positivity shared. This will be a HUGE HELP TO ALL OF US: BE UPBEAT AND POSITIVE WHEN SPEAKING TO OTHERS! DO NOT BOG OTHERS DOWN BY SHARING NEGATIVITY SUCH AS WHAT WE CAN’T DO, BUT FOCUS ON STEPS WE CAN TAKE.
One thing we must do to help is STAY POSITIVE when we talk to others. Just as you would not talk to a Child about negative outcomes of a storm, we all, ALL need comfort from our fellow humans right now. Just as we would not want our Mom to be overly anxious about a situation, think of your friends and neighbors who are anxious also!
. We want to help the people we love, and hopefully we want to help our fellow man who we don’t even know. I am going to work on this, and I already know it helps, because people who cared for me when I was incapacitated did it for me. And I made it thru to better days.
. I hope you are doing well, that you can see the sky today, wherever you are. One thing that helps me so much is prayer because I know God is close to me when I pray to him in his Son, Jesus name. Reading the Bible books of Psalms and brings me peace, and talking on the phone to others about God’s promises soon to be fulfilled. If I can just smile at someone, it lifts my mood and hopefully theirs as well. I send out my warm hugs and smiles to all of you.
Cant wake up. I feel like I am sick inside, hot and cold, sticky and uncomfortable one minute , all dry and freezing the next. I feel like I’m going thru withdrawals, and twitchy, jerky-but from what?!? I feel that it is the Benign Paroxysmal Positional Vertigo that I have endured since a series of concussions in 2013…BPPV is a type of vertigo from crystals in your inner ear becoming dislodged from a blow or hit on the head, and generally rights itself after 1 Epley Maneuver, which a trained pt performs.
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This is Sooo frustrating, because I don’t have a pt here, and the condition makes me so discombobulated and groggy that I can hardly go anywhere!So I have attempted the maneuver 4 times on my own, with no success it seems, and keep falling asleep everywhere I sit down. The other wrinkle to Post Concussion and TBI cases like mine, is the head injury caused a short-circuit from brain to diaphragm, so when my shuts down for sleep mode, I quit breathing. “Sleep Apnea!”, you exclaim, brandishing a Bi-pap and Mask… (oh, I just want to interject that I have had brief BPPV free days when my excelkent PT Tom helped me for 2 years… he would do the maneuver when needed and I balance trained and did exerciwes regularly)
So, going back to the CENTRAL Apnea, I have been sleep studied a second time since moving here, and had my poor septum done again, and the Nose Guy (ent) who performed the surgey said, “If you cant breath thru this nose then I dont know what else to do for ya!”
He checked out my sleep settings on my machine, said they were fine and sent me on my way with a script for little nasal pillows instead of the “Alien” mask I wear now.
Insurance doesnt pay, etc, etc So I go to bed, fight with the Mask until I’m finally exhausted and angry, then I drift for 20 minutes before ripping the parasitic thing off my face , flinging it wildly across the room, knocking my water off onto my med box…This causes me to rise up like a crazed Mama Kodiak, comforter flying like a war hero’s cape, kicking my medicine box across imaginary goal posts, with different colored pastel tablets raining down, as if confetti!
Cookie Monster!
After this nightly comedy of errors and arrows, I give up and decide to paint faux chintz wallpaper onto my bedroom walls. At 4AM.
Is it any wonder I am tired all day?
Oh, the truly funny part is that I went to bed at 7pm. so that I could be alert and well rested today!!
It has been AGES since I have been here, it seems that when I am on fire with my visual art , my written art suffers. Time is a factor, when I have 5 projects going at once, the voices in my head are rather subdued, because all the poetry is oozing out of my fingertips onto canvas, paper, metal, wood and wall. As has been the way this past year, with some success…
I had hoped top be able to exist on my earnings from my visual art, and while I am not there yet, I am making a dent. I have had one of my paintings put in a permanent collection, I have been highlighted with my artwork in a video for the nearby Mental Health Facility! Woohoo! I find that very satisfying and amusing all at the same time! I should have demanded money, but they didn’t offer, so I used it as a photo op. I gifted them the painting you see here, although I still have it here at the house , because I wasn’t satisfied with it… (never am, you know). I will have to take it in soon, to keep my word… and I need to see my wonderful therapist because memories are pushing their nasty little heads into my reality…
It’s the “holidays”… The time of memories… poo poo, bluck, bluck…. memories have too much power over me, so I guess I just stuff them. Me, the one always saying that “you have to let it out!” I let it out too much, which gave too many people too much power over me, too many ways to rattle my chain. I have been solitary, and sequestered here, and while it may be a little too much solitude I am glad to have my space. True, my sleeping habits could use improvement, but then I am a work in progress…
Just for today I don’t have to mourn. I can just be ok.
I am happy to say, I was able to get back into my blogs here at WordPress, after a lengthy absence. I was unable to remember my sign in information for the longest time, but finally I was able to get back here!!! My sister blog, Out of the Gutter Art, has been languishing also, even tho’ I have been furiously creating beautiful “Outsider” Art this whole time.
“The Sentinel’s Prayer”, acrylic on canvas, Susan T. Martin2017
I have had many upheavals ans bumps in the road as far as my emotional well being is concerned, but with the help of God, the Ultimate Therapist, and my human therapist (who is stellar!) I have come through victorious! The triggers were many, as this is the month my Parents died, and it also houses both mine and my Mom’s birthdays. I am a JW now, so I don’t celebrate my birthday, but it still holds significance in my heart, a marking of the passage of this fragile life.
Now my associations to birthdays is a very negative one, as my Mom died on her birthday, March 21, which also heralds the first day of Spring. Also my Dad was well into the dying process at home with only me there beside him on my birthday 2 years ago. That was a horrible, horrible time, as he suffered much. In the days that seemed to drag on forever, I remember at one point whispering to him “please don’t die on my birthday Daddy…” This sounds to me now like a rather heartless and self centered request, but he understood my trauma, I believe, even in the midst of his own, and did not. Rather, he fought his last fight during the wee hours of the next morning, finally succumbing at 6:15 the next morning. What a long, dark night that was.
I am finally not grieving the devastating sword thru my middle grief this year, but I anticipated the day with much apprehension and mental nail biting, as well as obsessive compulsive behavior, manic activity and lack of sleep. I am still feeling the effects, and most likely will have them build to a crescendo as March 21st approaches. Mom died in a less dramatic, but equally disturbing way, having to be taken to Hospice House rather than dying at home as she so desired, surrounded by her kitties. I have imprinted on my brain her sitting in her bed like a deflated teddy bear, whose sad eyes cut right thru me as she said, “Susie, I’m not ready…” However the cancer was by this point ravaging her brain, and I could not physically care for her at home.
here I am after Mom had died, well into my Dad’s last years of Severe Dementia and Alzheimer’s. I was his, and Mom’s sole caregiver.
I had a fourteen day vigil beside her bed, singing, praying , reading the Bible to her and holding her hand. Finally at the point of total exhaustion and grief, I fell asleep beside her, and as I dreamed of happier times, she breathed her last. Ours was a bond stronger than death, and I so eagerly anticipate the day when they are both called out of the memorial tombs in the grand resurrection , when I will run into their arms again.
This hope is made even more sure this month as millions of humans around the globe, and me fulfill our obligation to mark the Memorial of Jesus Christ’ death, just as he commanded us to do at the last supper. On this occasion, just hours before his death, be broke bread an drank wine with his apostles, saying, “Keep doing this in remembrance of me.”
I praise Jehovah above for the undeserved kindness He has shown by providing the life of His perfect Son as a ransom for the sins of all mankind. By this loving act, every human on earth has the chance for living forever, without sickness, mourning, pain or death on a beautifully restored Earth. I raise my hands and my voice in praise to God, and thank him for his Son, My King and Savior, Jesus Christ!
You can join the Witnesses all around the earth at sundown on March 31st , 2018 as we join in remembering the Greatest Gift Ever given. You can ask any of Jehovah’s Witnesses for an invitation, or directions, or any other questions you may have and they will joyfully tell you. Also, the website jw.org will tell you what you need to know!
So, despite all my challenges, and mental health issues, I can take comfort that one day soon I will be reunited with all my loved ones. I also am so grateful to God for forgiving my multitude of sins by way of the ransom sacrifice of Jesus Christ. I hope someone else out there
…Sigh… Mom was more upset than I was initially, I had never compared myself to other girls before that, as I recall. I do remember Dad criticizing her photo-taking ability, as he conitinued to do for the rest of her life, and thereafter for a good portion of mine(till his death!). There were rumblings inside the jealous side of my psyche, the newspaper had it all there in black and white : Susie is different. You would think that would be a good thing for a little tomboy like me, but I did not like the way it felt.
pretty!”
