“The feeling of being doubted…is an ever-present background noise…”
Did you ever wonder if people believe you? Is that only the mental stomping ground of the addict? The alcoholic?
The feeling of being doubted, of my integrity being questioned, is an ever present background noise…especially when I am sick. I was even afraid, just now, to write the word ‘sick’. (wouldn’t it be better to minimize?)
One very HUGE contributing factor to this constant was the years upon years of describing extreme pain to a plethora of physicians who could find no ‘easy’ or ‘obvious’ condition to label me with. There were no broken bones, I had a history of drug abuse, I had a history of a mental illness diagnosis, and I am a woman. I was also very strong, working difficult physical jobs normally held by men, which may or may not have been a factor.
My experience has not been an isolated one when it comes to women who have Fibromyalgia and/or similar diagnosis. During the years before the medical profession widely recognized this condition I was one of a multitude who went thru years of mental anguish and physical agony before finally being given a smidgen of relief.
Finally a Diagnosis !
It took real determination (and very real disability and pain) to keep pushing on towards a diagnosis. I was told it was all in my head, that I was just overweight and needed exercise and that what I was experiencing was just a consequence of aging. At this point I was crying every night from the burning in my joints, in my muscles and in my spine. My best description for that time was as if I were wearing a dense heavy coat that was soaking wet, all the time. A coat that weighed about 100 pounds and was crushing me.
At this point my work was suffering, a kind boss had taken me aside after noticing my wincing, and suggested a Rheumatologist. Initially even he was sceptical until he got back the results of the CT Scans and MRI’s. (He was the first to order these types of tests!) I distinctly remember the initial shock at him gently taking my hand and apologizing, so sincerely, for not believing the severity of my discomfort. He went on to ask me if I had been in a car accident, the images showed that level of damage to my spine.
There were a myriad of issues the films brought to light, and from that point on my care finally addressed them. The physical relief was matched and even surpassed by the rush of validation! I was taken seriously!! I was, finally, believed!
I think it is a challenge to live a solitary life. I don’t dislike it, but I reminisce too much about sad events. It’s like my past has tentacles that slither out of the photo albums, out of the closets, out of the desks and cabinets to wrap themselves, insinuate themselves into my present. I spend days prying their suction cups off of my psyche, until I give up and just allow the octopus to swallow me whole.
. Fall in a heap, exhausted. Then get up, clean up, and do it all over again.
. There is joy in this. This “living” we do. No matter how sweaty, or dirty, or ugly, this “living” is a beautiful thing.
. There is no ‘give up’ here, no ‘quit’ , no ‘over it, no ‘packing it in’.
This is where every. breath. matters.
. DO YOU HEAR ME?
EVERY BREATH MATTERS.
Right now, in my little trailer in the middle of down, down, way down and out USA, I am deciding to care. I am deciding that my sufferings will amount to something, that all this silence and fear and worry in my heart will be done away with, that with this breath of life my Creator blessed me with will be used to help someone else live, too.
. I know I’m a rag-tag mess. I can’t think straight most of the time, and there are days I can’t leave my house. I am oppressed by an illness that tells me I don’t have it, and that feeling like I’m sick is a sin. I’m not exhausted, it tells me, I’m lazy. I’m not in excruciating pain, I’m a dope seeker. I was not abused, assaulted and raped, I was promiscuous.
. I am here, I am now, and with my God’s help, I will reach out to someone else. And with my God’s help, I will not believe the lies. Instead I believe the Bible, God’s own letter to me, and to all his children. I want to live.
What do I say to a black mother whose son was murdered at the hands, or knee, of a white man?
. I saw George dying, in front of all the world, murdered. Every fiber of my being cried out for action to save him, knock that cop off of him, hurt those who were hurting him, scream “STOP!!!!!” at the loudest volume my wind and stretching vocal cords could scream. I saw him die. I could see the actual moment the life left him, we all could. His killer’s arrogance galled me, I cried as if George was my own. Those awful, endless minutes are now emblazoned on my conscience, and the world’s. But George’s suffering was finally over, the pain had ended for him. His family’s pain goes on.
. My daddy died unjustly, and it took years for my anger and pain to subside. But, then, I am white. And it wasn’t a police organization, or even a police man who killed him. For me it was a hospital, who killed him just as surely as if they kneeled on his neck. And he was a Sicilian man, very dark complected, 1st generation borne of immigrants to this country, but I suppose he will be considered a “white” man by history.
. But the pain I felt is the same pain George’s loved one’s feel in this sense: there was death, it was not natural, there was injustice, and there is anger. I feel it now, these years later. I was righteously indignant, I loved my daddy more than any girl ever loved her daddy, ever in the whole world. Whole universe I thought. I never saw his flaws, he was a hero to me, and they murdered him, and someone had to pay. I had to make it right , for him. For his memory.
. They hated me at that hospital, I believed. They had been out to get him, because we were poor, and because everyone knows doctors and hospitals only want one thing, right? Money. And we all know that there are very baaaad people in the medical field, there is a long, very, very long history of distrust in the Sicilian immigrant community against the “establishment”. It carried down from tyranny and mafioso, in the “home” country, where my ancestors were murdered and enslaved and oppressed by terrible injustice. Not only was the regime murderous and corrupt, even the local officials were, requiring payoffs and inflicting gross injustice and physical pain on the poor people who were supposed to be under their care. They had no choice, starve, be murdered, or board ships of misery with their last pennies to try living in a beckoning land across the great sea.
. My granparents had experienced the ghettos in New York when they arrived, cramped, dirty, unlit, no facilities, living in dark, dank, freezing, stinking tenant housing in their new country. Now, instead of their tropical isle, where they knew the enemy, there were new enemies to contend with. Such hatred, such predjudice, such injustice, such poverty. All these conditions shaped the mentality of generations, the distrust of the “system”, the lack of eqaulity, the oppression…
. My father was an angry man. For as far back as I have memory, he was mad at what he perceived as injustice in government. In another age pehaps he would have been a radical, I dont know. But he worked so hard, all his life, had access to more education than his parents ever had, served in the military and was able to move to Florida in his early 50’s. which had been his lifelong dream. He never stopped working, even then, and I had everything I needed as his kid, except love. But I adored and idolized him, to my mother’s dismay. When I became his sole caregiver, he was my child, and I determined to never let anything bad happen to him. For all the grief I had put him through in my life as an addict, now that I was sober I would appease his every whim, and ease his Dementia and Alzheimer’s. He was my reason for being, for except for my dear shih-tzu’s I had lost everyone in my family, and had no children.
. I was a she-bear when it came to his care. Endless research, talking to pro’s and others on caring for the elderly. But no matter what I promised him, no matter how good I cared for him, and no matter how totally committed I was in my devotion, I was not able to save him from being killed.
. So, then. What can I say to the millions of traumatized, oppressed, angry people who are fighting right now? They will do what they believe they must, to find relief for their anger. But to the loved ones of a man who died unjustly, there is something I can say, even in my proverbial “whiteness”: I am so, so sad for you. I can relate. I can relate to the sickening feeling in your gut, that horrendous hot ball of lead where your heart used to be. I remember the anger, the absolute bursting feeling of helplessness, the burning knowledge that this should never have happened to your child, your son, your daddy, your husband, your brother, your uncle, your nephew, your cousin, your dear, dear friend. Your Beloved.
. My pain was real… Your’s is all too real right now. I will never question your pain, or think I know what you should feel, or do. I never want to exaccerbate your suffering. everyone grieves in a different way, for different lengths of time, for different reasons. there is never a right or wrong way to grieve. I wish you peace, someday…healing…a lessening of this great burden you carry.
. My anger was only relieved by my learning the true reason for death, suffering and in justice. Knowing and believing in the the knowledge that God will soon do away with the true source of the evils we experience as humans. the tormenter of us down thru the ages, all the way back to the garden of Eden. The father of the lie, Satan.
God had an answer to Satan’s lie right there on the spot: Jesus Christ, God’s Only-Begotten Son and The King of God’s Kingdom would crush Satan and throw him and all his cohorts into the Abyss!! It will happen very soon, when God says it is time! Then the words of Revelation will come true!
Revelation 21:3-5 reads:
. ” With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them , and they will be his people. And God himself will be with them.(4)And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”
(5) And the One seated on the throne said:”Look! I am making all things new.” Also he says:”Write, for these words are faithful and true.”
. Such beautiful words…a beautiful dream, perhaps? No. A promised reality from our God who cannot lie, whose purposes always succeed, and whose prophecies always come true. I have a favorite scripture about the surety of all God’s promises coming true, maybe because I am a farmer at heart, who has always loved the rain.
. This is in the Bible book of Isaiah, in Chapter 55, beginning in verse 8: “For my thoughts are not your thoughts, and your ways are not my ways,” declares Jehovah. (9) “For as the heavens are higher than the earth, So my ways are higher than your ways, and my thoughts than your thoughts. (10) For just as the rain and snow pour down from heaven And do not return there until they saturate the earth, making it produce and sprout, Giving seed to the sower and bread to the eater,(11) So my word that goes out of my mouth will prove to be. It will not return to me without results, But it will certainly accomplish whatever is my delight, and it will have sure success in what I send it to do.”
. Yes, The Creator of the entire Universe has everything taken care of, he has told us that he will be the only Judge, and His Son will carry out his Judgement. The Ride of the Four Horsemen is already well underway. One day soon our dead loved ones will be resurrected and what joy there will be, when this earth is finally free of evil and we will live forever in peace.
. Please take the time to learn what the Bible says, I want you to have the peace of mind and heart that I finally found. It is not too late, my friend.
Is anyone out there as old as I am? I grew up to the Mary Tyler Moore show, on every week as I recall. When I was 10 or so, she was beautiful to me, not just as a pretty woman (which she was and is, if she is still alive, is she?…)but as a woman in “the workplace”. I was too young to understand the dynamics of discrimination against women, I was buying into the whole “be a good girl, speak when you are spoken to” misogynist mantra.
Flamingo Billiards Tour at Amy’s Billiards (pictured) The Year Before Fall
Day Old Cleopatra
Mommy and Izzy, in Alabama
my sweet, one eyed pup
That is where the slogan “We’re going to make it after all” first made me feel warm and fuzzy. My folks both worked long, hard hours to feed my brother and I. We saw them briefly each morning. Mom on her way to bed after all night at a local “old folks” hospital, and Dad on his way to the Speciality Steel Mill. The only thing “special” about the steel mill that I could see was the fact that Dad was “‘specially”angry when he got home.
In God’s Memory
Dad and his Fan Club!
baby cleo, in her new dress!
aren’t i the cutest thing you’ve ever seen?
inside the circle of my heart
KODAK Digital Still Camera
Baby Cleo, who had to learn to live with one eye!
. We didn’t want for anything that I ever knew, except that I never got designer jeans like my best friend, with the rich dad. No, my belly was full, and I was as happy as a chubby pre-teen with thick glasses and a mouth full of braces could be in the late 70’s. The only thing lacking was joy, any kind of joy, at home. Even “The Holidays”, when I still celebrated them, were joyless, because there was always disappointment lurking under the tree. Family gatherings were nice before I got old enough to feel the undercurrents of dislike and tension that flowed thru the affairs, like the lambrusco in the fancy glasses.
. We are going to make it. After all.
African Lily, one of my favorites!
sunset in paradise
He Love Us!
“i’m not sure how my feet work yet…”
. I’m in the ” after all” phase of life now. And I have made it, thus far . All the family drama is distant history, now that my parents are dead they don’t fight as much.(chuckle). I have learned to live without them here, and I have gleefully learned to live without my abusive ex and now deceased husband. (No, I’m not gleeful at his being deceased.)
. I have lived on my own for 4 years now, Dad died on 3/7/16, and Mom on 3/21/10. The grief did not stab me like a bayonet to the stomach this year, no, it was a dull, ongoing ache that I thought I didn’t feel, until this very moment. A heaviness inside my heart, a gray, damp blanket on my view. But I have made it, after all…
My Izzy, 2005-2017
This is me now, the pain has mellowed, I see love ahead!
“The Sentinel’s Prayer”, acrylic on canvas, Susan T. Martin2017
. I want to share happy tidings, tho’, not the fear mongering that is flying all around the internet and all the airwaves. Yes, this Pandemic is a very, very bad thing. Many of our loved ones, friends and neighbors will get very sick, and many will die. More people will die than usually do in a “regular” time period. It will be very difficult to work, to shop, to meet with friends and family. However, we must endure these difficulties with a hopeful demeanor, and share our hope with Everyone we can!!! We All need to support our fellow humans, and we CAN!!!!!
You may ask why, and I understand how hard it is not to have a pity party when one has no access to TP or Oreos. I am not immune to this situation, especially the Oreo thing. But as a person who has lived with chronic intractable pain all over my body for the last 20years, I do have experience with the power of positivity shared. This will be a HUGE HELP TO ALL OF US: BE UPBEAT AND POSITIVE WHEN SPEAKING TO OTHERS! DO NOT BOG OTHERS DOWN BY SHARING NEGATIVITY SUCH AS WHAT WE CAN’T DO, BUT FOCUS ON STEPS WE CAN TAKE.
One thing we must do to help is STAY POSITIVE when we talk to others. Just as you would not talk to a Child about negative outcomes of a storm, we all, ALL need comfort from our fellow humans right now. Just as we would not want our Mom to be overly anxious about a situation, think of your friends and neighbors who are anxious also!
. We want to help the people we love, and hopefully we want to help our fellow man who we don’t even know. I am going to work on this, and I already know it helps, because people who cared for me when I was incapacitated did it for me. And I made it thru to better days.
. I hope you are doing well, that you can see the sky today, wherever you are. One thing that helps me so much is prayer because I know God is close to me when I pray to him in his Son, Jesus name. Reading the Bible books of Psalms and brings me peace, and talking on the phone to others about God’s promises soon to be fulfilled. If I can just smile at someone, it lifts my mood and hopefully theirs as well. I send out my warm hugs and smiles to all of you.
I have been reminded of God’s Love for me. I commemorated the Memorial of Jesus Last meal with his apostles on Friday. At Sundown, with my fellow worshipers’ of Jehovah, we gathered at sunset and did just as Jesus commanded his followers to do: passing first the unleavened bread, then the wine .
The ceremony, and the discourse were beautiful, and I have been reflecting long and hard on how much God loves us to offer his Son as a ransom for us, a path to forgiveness.
I am so grateful, I wanted to share my love with you. Because soon all suffering and pain, tears and sadness, illness and death will be gone forever. Then the real life can begin! I can’t wait to see you in paradise!
I want to grasp my resurrected Mom and Dad, and dance in a field of flowers!
I hope that it means that some where, in this great big world, a child won’t be violated tonight…because someone talked to a parent, a trusted adult, a mental health professional, a trusted member of law enforcement, a dear friend, and told them what had happened. And that the child in need was protected, held fast and kept safe, warm, and loved.
I hope that this year a young person remembers the warnings their elders give them about safety, about drinking, drugging and having sex, about going out with strangers, or getting into dangerous situations. That by remembering he/she sees the warning signs, feels the prickle of fear and runs home just as fast as their legs can carry them. I hope they tell their friends to leave too, to be brave enough NOT TO CARE WHAT THEIR FRIENDS THINK! (I can tell you that, for me, those friends sided with my abusers the next day, and I was all alone in my shame and embarrassment and pain. My girlfriends laughed right along with the men at my torn undies hanging from a tree branch… )
Be AWARE !!! BE aware of your surroundings, be aware of where the streetlights are, be aware and stay away from dark alleys, dense shrubbery and people who make you feel uncomfortable. Don’t tell yourself that you are just “being silly”. I never thought ill of anyone when I was a kid, I liked to be around older guys, and I thought they liked me…I never thought that I could be the one they raped- The other girls were pretty, and “sexy”. I never thought a couple beers could hurt, or some weed-a few tokes, right? I was no match for an adults strength, especially not with my guard down and buzzed.
What I want you to know is that if I could turn back time, I would listen to people who told me to take care, but I know this is such a tough world. We get lonely, we want to grow up so we can have “fun”, and no one at home seems to give us attention. That’s how I felt. All my friends had “boyfriends”, they all had “boobs”, they giggled at all the boys. And my folks were always working, or sleeping or watching t.v. I couldn’t wait to hit the night air, pull my jean jacket on and take a long swig out of a bottle…
My life changed forever. I see kids I knew with beautiful families, homes, and feeling good about themselves…I have spent the last 45 years recovering , healing my broken mind, my beaten body, and my crushed spirit… Please, please be aware that these things can happen.
My heart breaks for the families of children who just made that one error in judgement, never to be the same again.
If my experience could just get one person to think for a second before making a decision, then please, take it to heart. I am truly grateful to have survived the violence, God has seen fit to use me today. I hope you can draw close to Him too. He will never hurt or abandon you.
If something ever does happen to you, please find someone to talk to who can help. A rape/crisis center, or hotline can let you be anonymous if you want to. Please don’t carry it around inside. For me it just hurt too bad to keep in. But when I let it out and got help, I began a wonderful healing journey!
I wish you love, and peace tonight. Just be aware.