The Discomfort of Disbelief

“The feeling of being doubted…is an ever-present background noise…”

Did you ever wonder if people believe you? Is that only the mental stomping ground of the addict? The alcoholic?

The feeling of being doubted, of my integrity being questioned, is an ever present background noise…especially when I am sick. I was even afraid, just now, to write the word ‘sick’. (wouldn’t it be better to minimize?)

One very HUGE contributing factor to this constant was the years upon years of describing extreme pain to a plethora of physicians who could find no ‘easy’ or ‘obvious’ condition to label me with. There were no broken bones, I had a history of drug abuse, I had a history of a mental illness diagnosis, and I am a woman. I was also very strong, working difficult physical jobs normally held by men, which may or may not have been a factor.

My experience has not been an isolated one when it comes to women who have Fibromyalgia and/or similar diagnosis. During the years before the medical profession widely recognized this condition I was one of a multitude who went thru years of mental anguish and physical agony before finally being given a smidgen of relief.

Finally a Diagnosis !

It took real determination (and very real disability and pain) to keep pushing on towards a diagnosis. I was told it was all in my head, that I was just overweight and needed exercise and that what I was experiencing was just a consequence of aging. At this point I was crying every night from the burning in my joints, in my muscles and in my spine. My best description for that time was as if I were wearing a dense heavy coat that was soaking wet, all the time. A coat that weighed about 100 pounds and was crushing me.

At this point my work was suffering, a kind boss had taken me aside after noticing my wincing, and suggested a Rheumatologist. Initially even he was sceptical until he got back the results of the CT Scans and MRI’s. (He was the first to order these types of tests!) I distinctly remember the initial shock at him gently taking my hand and apologizing, so sincerely, for not believing the severity of my discomfort. He went on to ask me if I had been in a car accident, the images showed that level of damage to my spine.

There were a myriad of issues the films brought to light, and from that point on my care finally addressed them. The physical relief was matched and even surpassed by the rush of validation! I was taken seriously!! I was, finally, believed!

The SLOG of Joy

Grumble. Growl. Grunt.

.   Swear. Sweat. Stomp.

. Punch. Pound. Pant.

.  Breathe. Binge. Boss.

.  Shout. Scream, Smear.

.  Fall in a heap, exhausted. Then get up, clean up, and do it all over again.

.  There is joy in this. This “living” we do. No matter how sweaty, or dirty, or ugly, this “living” is a beautiful thing.

.   There is no ‘give up’ here, no ‘quit’ , no ‘over it, no ‘packing it in’.

This is where every. breath. matters.

.    DO YOU HEAR ME?

EVERY BREATH MATTERS.

Right now, in my little trailer in the middle of down, down, way down and out USA, I am deciding to care. I am deciding that my sufferings will amount to something, that all this silence and fear and worry  in my heart will be done away with, that with this breath of life my Creator blessed me with will be used to help someone else live, too.

.  I know I’m a rag-tag mess. I can’t think straight most of the time, and there are days I can’t leave my house. I am oppressed by an illness that tells me I don’t have it, and that feeling like I’m sick is a sin. I’m not exhausted, it tells me, I’m lazy. I’m not in excruciating pain, I’m a dope seeker. I was not abused, assaulted and raped, I was promiscuous.

.  I am here, I am now, and with my God’s help, I will reach out to someone else. And with my God’s help, I will not believe the lies. Instead I believe the Bible, God’s own letter to me, and to all his children. I want to live.

3 Hours Sleep and I’m Feelin’ Good!

Righty O! How about that Picture, huh? Oh, my…

.   That’s my “I’m so tired I can fall down right in this spot and sleep for a month” face. And it’s none too pretty. It’s also the most unflattering view of my nose…I was never unhappy with my nose until my Ex broke it . We were pretty high, and the cops had a roadblock we were going to drive past, and in my nervousness I didn’t realize he was just waving us around a broken down car. So I was going to stop and roll down my window, but that psycho husband of mine hit me with a right hook that I knew had broken my nose the minute it landed. Now with my nose smashed and bleeding and my lover screaming, “Just Go! JUST GO YOU STUPID @#$!%&!!” I rolled right thru the zone just praying that the cop would see my pain and lock my old man up forever.

.    Unfortunately, I had a long way to go with him, not only in miles on that specific trip, but years in marriage as a hostage to this monster. I cried and whimpered while he continued to berate me all the way to our friend’s house, at which time I ran into the house to pry my broken contacts out of my eyes, and ask for an ice pack. And a stiff drink.

.  The woman who lived there with her common law husband was no stranger to domestic violence, I had seen Jim go at her plenty of times when he was drunk. They had a 2 year old little tow-head named Gregory who I loved dearly, he came over with his blue eyes big with compassion, and said, “Bwoke?”while pointing his tiny finger at my face.

.  Lori took me aside while I was lameenting, “He broke my nose. HE BROKE MY @#$!&%!! NOSE!” and told me I should be taking pictures of all the injuries my husband had been inflicting on my person almost daily, I was too mad to listen, but years later I now wish I had. I guess the scars, PTSD and crooked nose will have to do.

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The Way I See Sue©STMartin

.  Anyway, I was still ticked off and full of the kind of courage that comes from straight whiskey, so I sat on the couch loudly lamenting my poor nose. That’s when Lori’s husband Jim looked at me laughing and said, “What’s the difference? You already had a big shnoz !!!”  My husband thought this was a riot also.

.  That was the day I began to hate my nose.

.  About 5 years after this incident, Lori and Jim were fighting again, and she came to us (well,  to my husband ) asking for help to buy a gun.  She claimed she feared for her and her son’s life,  Jim was “wild”and “dead set” on killing her. In our cocaine induced insanity, we went to a guy my hubby knew , and purchased a gun for Lori. Later that night, we met up with Lori in a Grocery Store parking lot. My Ex showed it too her, she had many questions. She purchased it. (By this time , after years of this woman’s unusual interest in my husband, I had learned to hate her. It turned out I had good reason to do so.)WIN_20200710_02_11_35_Pro_LI (6)

Approximately six months after the “transaction” my husband was  working with a crew of guys subcontracting welding for the Charleston  Naval Shipyard , and the ATF and FBI threw down on them all in our van while they were at the Shipyard . Lo and behold, little Lori, our “best friend”, had been wearing a wire during, not only the gun transaction, but in ALL the “meetings” she had with my husband. He had been sleeping with her for years, as I learned at his trial.

.  Well, he got 15 to life as a habitual  offender, I sold my hot rod 71 Mach One and his Harley to hire his attorney. After that I eventually made it to my parents home in Florida, got clean and sober and divorced jerk face. That was in ’02. He got out in 2011, remarried another womedan he had been cheating on me with. He died on February 7th alone at their home of a major coronary. And so ends that chapter of my incredible life.

.                             Crazy, man. Just crazy…WIN_20200720_06_43_02_Pro_LI (3)

Sexual Assault Awareness Month

What this means to me :

I hope that it means that some where, in this great big world, a child won’t be violated tonight…because someone talked to a parent, a trusted adult, a mental health professional, a trusted member of law enforcement, a dear friend, and told them what had happened. And that the child in need was protected, held fast and kept safe, warm, and loved.

I hope that this year a young person remembers the warnings their elders give them about safety, about drinking, drugging and having sex, about going out with strangers, or getting into dangerous situations. That by remembering he/she sees the warning signs, feels the prickle of fear and runs home just as fast as their legs can carry them. I hope they tell their friends to leave too, to be brave enough NOT TO CARE WHAT THEIR FRIENDS THINK!  (I can tell you that, for me, those friends sided with my abusers the next day, and I was all alone in my shame and embarrassment and pain. My girlfriends laughed right along with the men at my torn undies hanging from a tree branch… )

Be AWARE !!!  BE aware of your surroundings, be aware of where the streetlights are, be aware and stay away from dark alleys, dense shrubbery and people who make you feel uncomfortable. Don’t tell yourself that you are just “being silly”.  I never thought ill of anyone when I was a kid,  I liked to be around older guys, and I thought they liked me…I never thought that I could be the one they raped- The other girls were pretty, and “sexy”.  I never thought a couple beers could hurt, or some weed-a few tokes, right? I was no match for an adults strength, especially not with my guard down and buzzed.

What I want you to know is that if I could turn back time, I would listen to people who told me to take care, but I know this is such a tough world. We get lonely, we want to grow up so we can have “fun”, and no one at home seems to give us attention. That’s how I felt. All my friends had “boyfriends”, they all had “boobs”, they giggled at all the boys. And my folks were always working, or sleeping or watching t.v. I couldn’t wait to hit the night air, pull my jean jacket on and take a long swig out of a bottle…

My life changed forever. I see kids I knew with beautiful families, homes, and feeling good about themselves…I have spent the last 45 years recovering , healing my broken mind, my beaten body, and my crushed spirit… Please, please be aware that these things can happen.

My heart breaks for the families of children who just made that one error in judgement, never to be the same again.

If my experience could just get one person to think for a second before making a decision, then please, take it to heart. I am truly grateful to have survived the violence, God has seen fit to use me today. I hope you can draw close to Him too. He will never hurt or abandon you.

If something ever does happen to you, please find someone to talk to who can help. A rape/crisis center, or hotline can let you be anonymous if you want to. Please don’t carry it around inside. For me it just hurt too bad to keep in. But when I let it out and got help, I began a wonderful healing journey!

I wish you love, and peace tonight. Just be aware.Resized952019040395161126957622Resized952019040395155335959016

VERTIGO, INSOMNIA and PAIN (oh, my!)

Cant wake up. I feel like I am sick inside, hot and cold, sticky and uncomfortable one minute , all dry and freezing the next. I feel like I’m going thru withdrawals, and twitchy, jerky-but from what?!? I feel that it is the Benign Paroxysmal Positional Vertigo that I have endured since a series of concussions in 2013…BPPV is a type of vertigo from crystals in your inner ear becoming dislodged from a blow or hit on the head, and generally rights itself after 1 Epley Maneuver, which a trained pt performs.

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This is Sooo frustrating, because I don’t have a pt here, and the condition makes me so discombobulated and groggy that I can hardly go anywhere!So I have attempted the maneuver 4 times on my own, with no success it seems, and keep falling asleep everywhere I sit down. The other wrinkle to Post Concussion and TBI cases like mine, is the head injury caused a short-circuit from brain to diaphragm, so when my shuts down for sleep mode, I quit breathing. “Sleep Apnea!”, you exclaim, brandishing a Bi-pap and  Mask… (oh, I just want to interject that I have had brief BPPV free days when my excelkent PT Tom helped me for 2 years… he would do the maneuver when needed and I balance trained and did exerciwes regularly)

So, going back to the CENTRAL Apnea, I have been sleep studied a second time since moving here, and had my poor septum done again, and the Nose Guy (ent) who performed the surgey said, “If you cant breath thru this nose then I dont know what else to do for ya!”

He checked out my sleep settings on my machine, said they were fine and sent me on my way with a script for little nasal pillows instead of the “Alien” mask I wear now.

Insurance doesnt pay, etc, etc So I go to bed, fight with the Mask until I’m finally exhausted and angry, then I drift for 20 minutes before ripping the parasitic thing off my face , flinging it wildly across the room, knocking my water off onto my med box…This causes me to rise up like a crazed Mama Kodiak, comforter flying like a war hero’s cape, kicking my medicine box across  imaginary goal posts, with different colored pastel tablets raining down, as if confetti!

After this nightly comedy of errors and arrows, I give up and decide to paint faux chintz wallpaper onto my bedroom walls. At 4AM.

Is it any wonder I am tired all day?

Oh, the truly funny part is that I went to bed at 7pm. so that I could be alert and well rested today!!